Several years ago, during the Joubert syndrome conference in Chicago, a couple people said I should write a book.
Being the literal person I can occasionally be, I took them at their word and thought I could do it. I posted about it in this then-fledgling blog, came up with some rough ideas based around some Transitioning to Adulthood things I'd done, and even ran it by a couple fellow adults with JS.
It was a bold idea, but I seriously had no idea what I was doing, and moved on by the end of that summer.
Since then, I've read books written by a friend of mine about his life as a person who stutters and his experiences becoming a sportswriter, as well as a man with Joubert syndrome who writes about using assistive communication.
Having read these, I notice my problem. Both those books are about the author's personal experiences, nothing more. I came off way too clinical with the Transitioning to Adulthood angle, and it sounded weird re-reading my ideas.
Just for kicks, I wrote a "Before I'm Forty" list a year or two ago, and added a bullet about writing a book based on my own life and journey. So, I might just try and do it this time, for real. Fingers are being crossed!
Cheers
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