Questions about my social life and making friends come up often at Joubert conferences, from both parents and individuals.
I was thinking about some of them the other day, so I wanted to write a few posts based on some of them.
I haven't written many posts like this since the beginning of the pandemic, so it should be interesting. And appropriate with the school year starting.
Cheers!
Hi,
ReplyDeleteMy name is Saurabh and i am based out of India. I read few of your blogs and found them really interesting and inspiring.
I came across your blog while searching about Joubert Syndrome. My nephew (6 months old) is diagnosed with the same, me and my family are really devastated and anxious about what to expect now.
I was wondering if there is a possibility to connect with you to understand your experiences so far and things we as a family can do to help the baby to have a better life.
Mail - mesaurabhsharma91@gmail.com
sawrabhsharma19991@gmail.com
I'd be happy to share as best as I can. You can reach me at smaclellan@jsrdf.org
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