A lot of people think that nothing tends to bother me. That's not entirely true. Yes I can be pretty chill, but things do still frustrate me. And when this happens, I can sometimes fly off the handle. I've been told that I yell at myself, "zone out" (like, losing focus), and occasionally even hit myself.
I know to distance myself whenever this happens, and my family is good at cluing me back in, but it is scary to think that someday, this could happen when I'm out in public. That's why I've started looking into ways of dealing with this.
Frustration, I've learnt, is common in people with Joubert syndrome so a parents group was the first place I looked for advice. Suggestions ranged from behavioural therapy and talking to a specialist to writing and finding something to occupy my time. I don't think I'm at the point where I need to seek professional help, though it is good to know for if/when things get to that point.
Finding something to occupy my time seems to make the most sense, as the placement I did has been over for a month and I'm currently looking for new work (or even volunteering) opportunities. Actually, I think work, and seeking independence in general, plays a huge part in my current frustrations.
But, I'm dealing with it, talking about it and, as one of the parents in the Joubert group mentioned, that could help parents understand what frustrates their children, and figure out ways to help them.
And just doing that makes me a lot happier.
Cheers!
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