Hi. I noticed I haven't been on here in a month, so I thought I'd do a quick update post.
Before I start, I just realized I've had this blog for over a month now (Whoa!). And, moving on...
One of the reasons I haven't been on here in a while is because I've been busy with some other things. The biggest is that I've been working more. Near the end of February, I got my first ever paying job! It's with a call centre that's operates online, which means I work from home. It's going pretty well. Within reason, the shifts/hours are pretty flexible, and the pay is decent. I'm still getting used to the whole professionalism side of it, though (setting up a schedule, printing off pay stubs, etc.) I'm getting there.
Looking at getting back into some writing, also. I've been writing articles online about transitioning to adulthood with a disability for over a year now, and I'm starting to come up with a couple new ideas. http://supportforspecialneeds.com/author/scott/. Additionally, I'm getting set to pitch a story idea to Exceptional Parent, a hard-copy/online magazine about disabilities.
Last week, I had my third major advocacy opportunity. I was asked to speak to the Ottawa Parent 2 Parent Resource Network of the Rare Disease Foundation. It was a small parent's group made up of two genetic counsellors and a handful of parents of children of all ages living with rare disorders.
Everything went well. I spoke about my life, going to college, family, getting diagnosed with Joubert, and speaking in Minneapolis. I got a lot of really good questions and comments from the parents, and they said they would let me know of any other advocacy opportunities in the future.
Well, that's it for now. Cheers.
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