Thursday, 31 December 2015

2015: I Was All Over The Place


Well, another year has come and gone!

2015 started off pretty uneventful then kicked into overdrive once the good weather came.

Winter and the majority of Spring were a mixed bag of odds and ends. In January, I had a Respiratory appointment that went well enough that the time between my appointments got pushed to nine months instead of six! I wrote quite a bit more on here, including this post which tons of people shared, and this one which is still one of my favourites! Still no work, but had my first experience with actually having to turn down a job (transportation issues).

As soon as the snow melted, I was out and about and making travel plans!

Early in May, I attended the Toronto Comics Art Fest for the third year in a row.


Took the train, got to my hotel, and had another great solo weekend!

I turned thirty the end of May. Was kind of a big deal.

The highest point of the year was definitely the Joubert conference in Chicago in July. I've already written about it at length, so this time I'll do the short version. Gave another successful presentation, got to see some good friends again, made a lot of new friends (including a few other adults with JS!), committed to writing a book (!), and toured a very nice city.


Family photo by Jenni Swenson
 
 
Great group of people!

I made the most of a warm Fall with a trip to Nova Scotia to visit my grandmother.

Where I ate this beauty!
And I also put in some time at the family's cabin.


Last but not least for the year, I gave another presentation. This time, I spoke to a class of Social Work students about growing up with a disability, getting diagnosed with Joubert syndrome as an adult, and how my family's dealt with all of it. Went really well.

So, that's about it. Overall, a pretty decent twelve months.

Already planning things for 2016, but that's for another post.


Cheers, and Happy New Year!








Tuesday, 29 December 2015

Fiction



Everyone who reads this blog knows about the number of disability-related things I've written or am currently in the process of writing. But, what some people may not know is that I started out wanting to write fiction.

In 2009, I went back to college for Scriptwriting. I'd always wanted to write my own comic book, so when I learnt that many comic book writers used scripts, it seemed like a natural fit.

The program included screenwriting (movies), writing for broadcast (TV), and writing for the stage (plays), as well as editing and some ad writing.

Over the course of the program, I had three major writing projects: an original screenplay, a pitch for an original TV series, and a one-act play.

The screenplay, which I titled  Roll With The Punches, was about the relationship between a soldier, his wife, and their physically disabled, wheelchair-bound son, who the soldier has never really been comfortable around. The soldier gets his legs blown off overseas and returns in a wheelchair. The family struggles to deal with the soldier's new lack of independence while the son plans on moving away for college or university after high school.  Long story short, there's fighting, family drama, and eventually, the father and son bond.

Everyone liked the idea, but it was really hard to write, and it didn't really end up being what I completely wanted it to be when I handed it in. I've thought about finishing it. Some day!

Next was the TV series. I chose to base my original series on cryptozoology (the study of Bigfoot, the Jersey Devil, and other undiscovered creatures) and called it Cryptic.

Originally, Cryptic was going to be about two agents, one of whom was a Greek siren, solving crimes and mysteries and other supernatural things. So, literally X-files with less aliens and more monsters. After coming up with some less-ripped-off ideas, I decided to make the show about a college Biology student, Christopher Banes, who is really into cryptozoology. One of Banes' professors has actually been studying these creatures for some time and takes Banes under his wing. With some assistance from one of the professor's former students and a friend/girlfriend of Christopher's, they protect all sorts of things, from Bigfoot, sea serpents, to animals in an ice age "lost world" from developers, hunters, and other villains.

Once these projects were done, the class got to pitch them to networks and producers in Toronto who, in turn, gave us advice. It was a fun trip and people really liked my ideas!

The following year, I went back and took the playwriting classes (I had gone on a reduced course load, so a 1-year program became 2). Here, we were asked to write a one-act play that would be partially presented in a dramatic reading later in the year.

My play centered on the owner of a comic book shop (because I obviously couldn't go without writing SOMETHING about comics!) The owner's shop is in danger of being bought out by an agent who think comics are childish. The agent blackmails the owner into signing over the store by threatening to go public with the fact that the owner was a former superhero, The Red Knight. Eventually, the store's one young employee, who is creating his own violent comic the owner dislikes, decides to make an updated version of the owner's former heroic identity. This, coupled with the addition of a new employee, sound like they'll be enough to save the store.

This was another fun one to work on, and seeing part of it performed by actors was really cool! After the program, I added to the play and mailed it around to a few people for feedback. I never heard much back, but it was worth a shot.

And last but not least was what I chose Scriptwriting for in the first place: a comic book. Even before the end of my first year, I had started adapting my Cryptid TV idea into a comic book. I got rid of most of the humans save for Banes, brought back the Greek siren, who I made a shape shifter), and added in a white Bigfoot with psychic abilities (because why not, right?) Together, they would protect a hidden, world-wide civilization of cryptids from a Dr. Moreau-type scientist.

Originally, I tried to self-publish and looked for artists. Some were good, some not so much. After narrowing down my choices, I asked the potential artists to draw one of my characters. It was so cool to see the results, and one artist even went further and drew my three heroes together!

Credit to Gerar Gonzalez
 Other things came up and self-publishing didn't work out, so I eventually pitched Cryptic to a couple guys here in Ottawa. They liked the overall idea, but felt the story itself needed work. I kept at it, tweaking things and creating more stories for a couple of years until I just sort of hit a wall. That's when I started writing the transitioning articles.

Comics, movies, and plays were really fun to write, but I've realised recently there's a bit more of a demand for the articles and book. Right now, the fiction stuff is just a cool hobby and something fun to think about when I'm drawing a blank with the disability stuff, but who knows about the future. Maybe I'll up and randomly create a my own disabled superhero someday!

Cheers!

Thursday, 24 December 2015

Wednesday, 9 December 2015

Changing Faces

Pictured: An adult with a disability
I've got a bit of a bone to pick with organizations that provide care for people with disabilities. Before I get going, I want to say that none of this is personal to any specific group or person, just a general beef.

Ok, here goes. I'm back in the process of looking for some help with personal care, to take some of the "weight" from my parents and give myself a little independence in the process. So, I've been on several websites by now, and here's my beef: Why, on any of these provider's websites, are there never any photos of clients who look roughly like me, disability-wise.

Like one website says it provides care to people of different ages and with various impairments, yet all of the photos show senior citizens. This is the same with other websites as well. Then there are sites where the photos are of mainly people who are more severely disabled.

I get that my disability is "invisible", and that the challenges faced by people within these demographics, and the modes of assistance they can require are easier to showcase through photos, but I just think it would be nice to see a little more variety once in a while. I mean, and no offense to anyone, but sometimes it can be a little disheartening to click on a website promoting assistance for disabled adults, and see nothing but people who are 65 years of age and older, when you're only 30.

Just sort of irksome.

Guess I shouldn't complain. I mean, better this than nothing at all, right?

Cheers!

Saturday, 5 December 2015

Outrunning Old Man Winter

Jerk
It's December, and he's gonna come eventually. It's inevitable. But for today, Ottawa got a reprieve from Old Man Winter. 9 degrees Celsius, on December 5th, in Canada!

I seized the opportunity and, after haircut, went straight downtown for the afternoon. Bought a ton of comics (of course), tried a new sandwich place for lunch, which was pretty decent, and spent most of the rest of the afternoon at a Second Cup, reading with a chai latte!

These should hold me over for, oh, two weeks??
Cheers!

Thursday, 3 December 2015

The Book II: Abridged Intro part 2 - What It's All About

This part's taken longer than I thought it would. I guess that's what happens when you've chosen to write something a lot longer than a blog post or page-and-a-half article.

Anyway, here's where I lay out some of the ideas of what I want the book to be about and the areas I want to focus on. For now, these are all rough ideas. I might add or scrap some things as I get going.

I plan on writing about transitioning to adulthood with a disability, with the hook being that it's from the perspective of someone who's been there (or, in some cases, still is there). But, I want to focus more on how to deal with the smaller, more universal things that come with having a disability. There are tons of resources out there related to disability-centric topics like healthcare, finances, and education, but the take-away from those are usually dependant on the individual and where they live.

My plan is to write about things that can apply to anyone with a disability going into adulthood, like talking to people about your disability, getting out into the community (and/or the world at large) any way possible, and being comfortable in your own skin. And again, this is all from someone who's been there.

Right now, I think I want to separate things into three broad categories: 1) Getting Out, 2) Dealing with Others, and 3) Accepting Yourself.

Getting Out will be about, well, getting out. Being independent in the world with a disability. It could be some kind of post-secondary experience like college, university, or another kind of program. Working or volunteering. Travelling abroad. Just going for a coffee. Whatever. It's all about being able to do things on your own.

Dealing with Others would be topics related to how to deal with other people in your life, especially when it comes to your disability. You're probably going to be with them for the long haul for one reason or another, so how do you handle being with family while still trying to be as independent as possible? What's the best way to talk to others about your disability? In this section, I also plan to write about bullying and how to advocate for yourself when it comes to doctors and healthcare.

 And last but not least, Accepting Yourself. This is a more personal area, devoted to ways to help those with disabilities feel better about themselves. It may be a touchy area, but I've definitely been there and I'm sure others have as well. For now, topics here will include feeling comfortable with your disability and staying positive, among other things.

And that's the latest. Now, here's where I could use some help. If anyone has any comments, questions, or ideas, I'd very much appreciate them. Even criticisms, but no haters please.

Cheers!