Disability Representation, it's Super Effective!

 

Whenever any of my geeky interests collide with disability, a blog post is required.

I've been a Pokémon fan since shortly after the first games came to North America. One of my guilty pleasures is watching playthroughs of fan-made games on YouTube. 

I'm currently watching one of a game called Pokémon Flux, and there are two "fakemon" (fan-designed monsters) that are variants of two original Fighting types, Hitmonlee and Hitmonchan, based on a wheelchair racer and amputee runner respectively, called Hitmonride and Hitmonbolt. 

I'm not posting photos, but will include a link to the game's wiki so you can see for yourselves. 

Never in a million years did I ever expect to see disabled Pokémon. Hats off to the creators. Very awesome! 

Cheers

(Just Under) Forty 'til Forty

 

I've got slightly under forty days until my fortieth birthday.

Is that weird? Yep.

Am I ready for it? Nope.

Just an observation.

Cheers!

Back to the Big Smoke

For the first time since 2018, I'm going back to Toronto and TCAF! 

Last year I debated it, but a location change made me nervous and I decided not to go. This year I sucked it up, spent the past month or so planning and doing research, and now it's all booked. TCAF is still in a different venue, but this time everything (hotel, TCAF itself, other things) seems to be right next to each other, so that makes me feel more comfortable. 

After seven long long years, I'm finally travelling on my own again!

Digits being crossed for health, safety, and good weather.

Cheers!

OLP30!

 

Starseed!

Last Friday, March 7, I went with my Dad to Our Lady Peace's Ottawa stop on their OLP30 30th anniversary tour, with Collective Soul and Wintersleep opening. An absolutely awesome, Bucket List-worthy concert!

Wintersleep, a band from Halifax, was pretty good, and Collective Soul were great as always (I saw them at Bluesfest about ten years ago). But, Our Lady Peace! One of my all-time favourite groups. I knew almost every song, save for a couple new ones and one or two I'd never heard before. I even sang along to most of them (was a little hoarse coming home afterwards).

About 3/4s of the way through the concert Raine Maida walks around the arena to its centre where there's a piano being set up. Being a really good storyteller and improviser, he leads the crowd in a rendition of Oh Canada. His wife, Chantal Kreviazuk sang a controversial version of the anthem a few weeks before at the Four Nations Canada/US hockey game. You could hear a pin drop! 

The last song was one of my favourites, Starseed, which I had desperately hoped would be played. I wasn't disappointed!

The drive home, I enjoyed American-style sweet tea from Chick-fil-A, leftover from dinner, and sang along to more Our Lady Peace, being played for "the drive home" on Ottawa's alternative rock station. I was seriously wired for most of the rest of the night, posting things on Facebook, looking up music on YouTube, and replaying music in my head until I finally crashed.

Big, big, thanks to my Dad for going with me and to Canadian Tire Centre staff who were helpful when and where things weren't as accessible as they probably should have been.

Cheers!

Gettin' Out 2025

 

Don't worry, it's mine

It's an unusually beautiful Saturday in Ottawa!

After a very busy work-week, and many weeks of lousy Winter weather, I booked it downtown for some reading/writing time, a walk, and a bite. The café I was at was getting surprisingly warm, so it was nicer to sit outside for a few minutes before getting picked up to go home. The area even proved to be a good location for a photo opportunity. 

Hoping this is a sign of good things to come.

Cheers!

The Rare Writer, Officially

 

I just began a new contract at work, which means that as of today, also Rare Disease Day, I am officially a Communications professional (coordinator, to be specific)!!!

It took some patience and creativity while my current position and former administrative role overlapped, but it's done. As of next week, I'm writing for real!

Cheers

This Blog Just Went to Eleven

 

I just randomly remembered that this past week was the Rare Writer's eleventh birthday! 

It's been a pretty great year, despite not writing as much on here. Thanks as always for the supports and readership.

Cheers!